Decisional needs assessment of patients with complex care needs in primary care: a participatory systematic mixed studies review protocol

نویسندگان

  • Mathieu Bujold
  • Pierre Pluye
  • France Légaré
  • Jeannie Haggerty
  • Genevieve C Gore
  • Reem El Sherif
  • Marie-Eve Poitras
  • Marie-Claude Beaulieu
  • Marie-Dominique Beaulieu
  • Paula L Bush
  • Yves Couturier
  • Beatrice Débarges
  • Justin Gagnon
  • Anik Giguère
  • Roland Grad
  • Vera Granikov
  • Serge Goulet
  • Catherine Hudon
  • Bernardo Kremer
  • Edeltraut Kröger
  • Irina Kudrina
  • Bertrand Lebouché
  • Christine Loignon
  • Marie-Therese Lussier
  • Cristiano Martello
  • Quynh Nguyen
  • Rebekah Pratt
  • Benoit Rihoux
  • Ellen Rosenberg
  • Isabelle Samson
  • Nicolas Senn
  • David Li Tang
  • Masashi Tsujimoto
  • Isabelle Vedel
  • Bruno Ventelou
  • Michel Wensing
چکیده

INTRODUCTION Patients with complex care needs (PCCNs) often suffer from combinations of multiple chronic conditions, mental health problems, drug interactions and social vulnerability, which can lead to healthcare services overuse, underuse or misuse. Typically, PCCNs face interactional issues and unmet decisional needs regarding possible options in a cascade of interrelated decisions involving different stakeholders (themselves, their families, their caregivers, their healthcare practitioners). Gaps in knowledge, values clarification and social support in situations where options need to be deliberated hamper effective decision support interventions. This review aims to (1) assess decisional needs of PCCNs from the perspective of stakeholders, (2) build a taxonomy of these decisional needs and (3) prioritise decisional needs with knowledge users (clinicians, patients and managers). METHODS AND ANALYSIS This review will be based on the interprofessional shared decision making (IP-SDM) model and the Ottawa Decision Support Framework. Applying a participatory research approach, we will identify potentially relevant studies through a comprehensive literature search; select relevant ones using eligibility criteria inspired from our previous scoping review on PCCNs; appraise quality using the Mixed Methods Appraisal Tool; conduct a three-step synthesis (sequential exploratory mixed methods design) to build taxonomy of key decisional needs; and integrate these results with those of a parallel PCCNs' qualitative decisional need assessment (semistructured interviews and focus group with stakeholders). ETHICS AND DISSEMINATION This systematic review, together with the qualitative study (approved by the Centre Intégré Universitaire de Santé et Service Sociaux du Saguenay-Lac-Saint-Jean ethical committee), will produce a working taxonomy of key decisional needs (ontological contribution), to inform the subsequent user-centred design of a support tool for addressing PCCNs' decisional needs (practical contribution). We will adapt the IP-SDM model, normally dealing with a single decision, for PCCNs who experience cascade of decisions involving different stakeholders (theoretical contribution). Knowledge users will facilitate dissemination of the results in the Canadian primary care network. PROSPERO REGISTRATION NUMBER CRD42015020558.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

A Review of Methods for Assessing the Care Needs of Patients with Disabilities

Introduction: The care needs of patients with disabilities are often neglected or not fully identified. Knowing the different methods of assessment can help the care team to choose the best and most comprehensive method of assessing care needs. Methods: This scoping review study was designed and implemented with a 5-step Arksey & O'Malley approach. the search strategy was set using the keywords...

متن کامل

Assessment of Decisional Conflict about the Treatment of Trigger Finger, Comparing Patients and Physicians

  Background: As an early step in the development of a decision aid for idiopathic trigger finger (TF) we were interested in the level of decisional conflict experienced by patients and hand surgeons. This study tested the null hypothesis that there is no difference in decisional conflict between patients with one or more idiopathic trigger fingers and hand surgeons. Secondary analyses address ...

متن کامل

Basic Needs of Mothers with Children Undergoing Hemodialysis: A Meta-synthesis of Qualitative Studies

Background: Mothers of children undergoing hemodialysis encounter severe changes in their daily lives. It is of utmost importance to raise the awareness of treatment teams about the needs of these specific groups of mothers and different problems they may experience. The reason is that it can help health care professionals to support the mothers to fulfill their roles as the primary caregivers ...

متن کامل

Care needs of patients with cancer: A scoping review study

Aims: cancer patients have to face with the disease, invasive treatments and adverse effects of the disease and treatments in a long term period. These people have various needs in long term process of diagnosis, treatments and recovery that often remain unknown and unmet. The present research aimed at evaluating the care needs of cancer patients in various aspects of life. Materials and Metho...

متن کامل

Unmet Care Needs in Breast Cancer Survivors: An Integrative review

Abstract Introduction: Understanding the unmet care needs of breast cancer survivors is one of the important aspects in healthcare delivery. Objective: This study aimed to identify the unmet needs of breast cancer survivors. Materials & Methods: This Integrative review search of evidence‐based research from five electronic databases (Web of Science, PubMed, Science Direct, Scopus and Google ...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:

دوره 7  شماره 

صفحات  -

تاریخ انتشار 2017